Category: Miscellaneous

Posted by Cort Johnson Discuss this article on the forums (Post-exertional malaise (PEM) is most likely the key symptom in ME/CFS. The realization that PEM (or a marked exacerbation of symptoms after exertion) may be unique to ME/CFS and needs to be closely examined finally hit home after the repeat exercise studies by the Pacific Fatigue Lab at the University

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Discuss this article on the forums Written by Lisa In life we have choices. Choosing gives us power. When we are thrust into a situation in which we have very little choice, it can leave one feeling very powerless. Thus has been my situation been for the many years I’ve been homeless in this very tent. Until now. For years

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Posted by Cort Johnson Discuss this article on the forums Written by Dreambirdie HERE IT IS! FINALLY, DONE! YAY!

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Posted by Cort Johnson Discuss this article on the forums Veronica Di Grigoli’s (Athene on the Forums) first novel, ‘Evil Eye’, just debuted on Amazon.com in the US after getting excellent reviews in the UK. Part detective story, part character study – think Amy Tan and Jane Austin looking for clues to a child’s mysterious disappearance in Istanbul – it

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Posted by Cort Johnson Discuss this article on the forums International XMRV Workshop Lineup – Conference and Workshop lineups can tell you alot about who’s in and who’s out. I remember a CDC lecture at the Reno CFS conference; it was a nothing lecture but there it was in prime time. Why? Probably because the CDC had to be given

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Discuss this article on the forums Written by The Spitfire I needed somewhere to come and vent about this. I am doing better, due to the shots, but I have had a set back due to my period. My period is the albatross around my neck always. It takes me from 60 to 5. I am really sad today and

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Posted by Cort Johnson Discuss this article on the forums Written by Carrigon I finally found a few things that are working for me. And this is after looking for a very long time. You won’t get rich off it, but it can be built up to a week’s grocery money. It really just depends on how determined you are,

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Discuss this article on the forums Written by Kelvin Lord I have waited 6 full months to be able to say this, and the day has finally arrived. So here it is: I know without a shadow of a doubt that Ampligen works. As I finish my 24th week of Ampligen, I can say with confidence that this amazing drug

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Discuss this article on the forums This article by Rebecca Hastings is from Society for Human Resource Management. It contain pertinent issues for people with ME/CFS including the hurdles to finding meaningful employment while on disability. Just because one is on disability does that mean one should not be allowed to work at all? That is one of the issues

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Posted by Cort Johnson Written by Lynn PANDORA Not only hangs in there to win but actually rises in the rankings as people with CFS pour the votes on in the last day! Congratulations PANDORA and congratulations to all of us for coming together. Next year all the CFS groups band together (Phoenix Rising will be a non-profit) and we

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Discuss this article on the forums Written by usedtobeperkytina I just wanted to give my review of the PR with the latest events. First we had the rumor of a pulled press release from CDC. Seems what was pulled was the study. If there was a press release with it, it was not just temporarily pulled but permanently pulled. So,

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Posted by Cort Johnson Discuss this article on the forums Written by Kelvin Lord With my nose completely shut due to allergies, out of desperation the other day I took an OTC antihistamine. It was Italian day at lunch and I had grown weary of not tasting any of my food, so ignoring the instruction panel I ripped open the

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