Category: Miscellaneous

Discuss this article on the forums Written by Kelvin Lord Kelvin Lords Continuing Experiences with Ampligen (ed) I admit it. I now have a pot-belly. And it bothered me. After being underweight for the past 2+ years, struggling with a lack of appetite and the associated difficulties in maintaining weight, since being on Ampligen for 2 1/2 months, hunger has

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Posted by Cort Johnson Written by Cort Dr. Goff, one of the top retrovirologists in the field, taked with Dr. Racaniello about XMRV for almost an hour. This was a rare opportunity to hear what experts in the field felt about the XMRV/CFS connection. Here’s my take on what they said from the XMRV Buzz Page XMRV and the Prostate

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Discuss this article on the forums Written by Kelvin Lord Yes, I’m going to talk about sex in this post, because one of our challenges is that this hideous virus not only diminishes our libido, but sometimes completely wipes it out. But I’m also going to discuss what I’ve found to be one of the best remedies for that part

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Posted by Cort Johnson Written by Kati This is a rare chance to get a view of how the XMRV/CFS connection is viewed by virologists outside of the ME/CFS field Part I: Transcribed by Kim TWiV 76: XMRV with Professor Stephen Goff by Vincent Racaniello on April 4, 2010 VR: I wanted to talk about XMRV with you. SG: Okay.

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Posted by Cort Johnson Written by Wayne Wayne posted this story of the benefits a person with brain trauma received from using EFT. It’s interesting how many of her symptoms resemble those found in ME/CFS and it illustrates how these types of techniques can alter neural functioning. I imagine that the right type of brain scan would have revealed a

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Posted by Cort Johnson Discuss this article on the forums In 2008 I participated in Dr. Baraniuk’s spinal tap study at Georgetown University in Washington, D.C. Some readers may remember how exciting Dr. Baraniuk’s first proteome study was; it was the easy winner of the Phoenix Rising Paper of the Year. The study suggested that chronic fatigue syndrome (ME/CFS) patients

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Posted by Cort Johnson Discuss this article on the forums Written by Cort I’d contacted Dr. Ravindran earlier and mentioned I was coming out to DC but we fell out of contact and I assumed my chances of getting the study in while I was in town were nil. It didn’t help that I waited for several days before I

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Discuss this article on the forums By Parvofighter PART 1 Much has been made of the “well-characterized” or “well-defined” patient cohorts (https://www.bmj.com/cgi/content/abstract/340/feb25_1/c1018) of the failed XMRV-in-ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) replication attempts. “Well characterized” somberly implies that the patients studied were robustly and meaningfully comparable to those in the landmark Science XMRV study. Namely: Canadian/Fukuda Criteria Chronic Fatigue Syndrome patients

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Discuss this article on the forums Written by Kelvin Lord Treatment #16 – by Kelvin Lord Today was the best day I’ve had in a long time. Like my old 1976 Cutlass Supreme years ago, my engine was humming, my hydramatic transmission was smooth as butter, and I even had the “new car smell” on me. This old vehicle actually

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Posted by Cort Johnson Written by Cort Marly Silverman and others at PANDORA and the Landford Foundation have big plans. She wants nothing less than to build the first NeuroEndocrineImmune Center for the research, treatment and education into diseases like Chronic Fatigue Syndrome, Fibromyalgia, Gulf War Syndrome, multiple chemical sensitivity and others in New Jersey. (Think the WPI’s Neuro-Immune Institute

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Posted by Cort Johnson Discuss this article on the forums Written by Cort Is there any more terrifying place for CFS patient to be than the emergency room the hospital? Sure, emergency rooms are upsetting for everybody but to be in emergency room knowing that the ER personnel’s biases towards you could leave you with substandard care, at the very

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Posted by Cort Johnson Discuss this article on the forums The Dr. Jekyll/Mr Hyde Virus – The more we learn about XMRV the more we can see how it could excite retrovirologists; it doesn’t appear to be like anything they’ve come across. XMRV is clearly not HIV; HIV is a lentivirus (not a gamma-retrovirus); HIV replicates well in immune cells

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