Julie Rehmeyer’s ‘Through the Shadowlands’

Writer Never Give Up talks about Julie Rehmeyer’s new book “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t Understand” and shares an interview with Julie …  A riveting new book by science journalist, patient and ME/CFS champion, Julie Rehmeyer, has just hit the stands. “Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t


The End ME/CFS Project: History Taking Root

Clark Ellis spoke with Dr. Ronald W. Davis and Linda Tannenbaum about the End ME/CFS Project …  History The history books record that in the nineteenth century Louis Pasteur formulated a “germ theory” of microbes as the causative agents of disease, and thus revolutionized medicine. His findings, along with his contemporary, John Snow (who linked cholera to infected water supply), changed

W. Ian Lipkin

The Lipkin Microbiome Crowdfunding Campaign Launches!

An ambitious $1.27m international, patient-led fundraising campaign storms into action. Sasha invites you to join it!​ This week sees the launch of a major new crowdfunding campaign: the Microbe Discovery Project. The campaign aims to raise $1.27 million (£760,000; €910,000) by 31 December 2014 to fund world-famous virus-hunter Dr. Ian Lipkin’s ground-breaking study of ME/CFS and the gut microbiome –


ME/CFS Buzz: Med Students/Chromosomes/Disability/Growth Hormone/FM Everywhere? (April 17, 2012)

Posted by Cort Johnson RESEARCH A Real Disease or What? Medical Student Survey Suggests Younger Generation Starting to Get It BMC Med Educ. 2012 Apr 3;12(1):19. [Epub ahead of print] Do you think it’s a disease? A survey of medical students. Erueti C, Glasziou P, Del Mar C, Van Driel ML. Almost 200 medical students at Bond University in Australia were polled as to


ME/CFS Buzz (April 4th, 2012) CFS Patients Pass the Effort Test, West Nile Virus, Cancer …

Posted by Cort Johnson RESEARCH Yes! They are Really Trying……CFS Patients Fail Cognitive Test and Pass the Effort Test… J Clin Exp Neuropsychol. 2012 Mar 23. [Epub ahead of print] Test effort in persons with Chronic Fatigue Syndrome when assessed using the Validity Indicator Profile.Cockshell SJ, Mathias JL. Everything, apparently, has to be nailed down in science. At the Ottawa IACFS/ME conference Pacific Fatigue Lab


ME/CFS Buzz (March 19th) – the Gut, the Brain, the Immune System and more

Posted by Cort Johnson RESEARCH A Biological Cause of ‘Poor Stress Management’ Found in ME/CFS? Brain Behav Immun. 2012 Mar 6. Stress management skills, neuroimmune processes and fatigue levels in persons with chronic fatigue syndrome. Lattie EG, Antoni MH, Fletcher MA, Penedo F, Czaja S, Lopez C, Perdomo D, Sala A, Nair S, Fu SH, Klimas N. Its certainly not clear that everyone with ME/CFS reacts poorly to stress but anecdotal reports suggest that


ME/CFS Buzz (March 12th 2012)

Posted by Cort Johnson RESEARCH GROUPS ON THE MARCH….. CAA Spells Out Approach in Research Ist Webinar I believe we are at the cusp of a revolution in how CFS is viewed, researched and treated. I don’t know it’s a year or 5 years but the future has never been brighter. Kim McCleary With 471 people enrolled, participation in a


ME/CFS Buzz: News of the Week From Phoenix Rising (Feb 29th, 2012)

Posted by Cort Johnson ME/CFS Buzz: News of the Week – a New Feature From Phoenix Rising (weekly short takes on ME/CFS research, treatment and news)   RESEARCH   Fear and Loathing….An Exercise Study  Kinesiophobia, catastrophizing and anticipated symptoms before stair climbing in chronic fatigue syndrome: an experimental study.Nijs J, Meeus M, Heins M, Knoop H, Moorkens G, Bleijenberg G. Nijs