“We have an effective drug that’s very, very safe” Dr. Dan Peterson Nothing better demonstrates the adage that ‘nothing comes easy in CFS’ better than the story of the only CFS drug to ever come before the Food and Drug Administration (FDA). Produced by a small pharmaceutical company called Hemispherx that, at least in its early years, displayed a propensity
Search Results for: Ampligen
Twisted History: Ampligen and CFS
A Twisted History – Twenty years ago advocates were lobbying for ‘fast-track’ status for the new wonder drug they hoped would cure the disease. Ampligen never had a chance of being fast-tracked given the patient population wasn’t dying in large numbers but no one ever thought 20 plus years later the fate of the drug would still be unclear. Ampligen’s
Ampligen Study Sparks Hopes for FDA Approval of First Drug for CFS
Posted by Cort Johnson Short-take: Hemispherx provides added proof of Ampligens efficacy in ME/CFS and allays safety fears but is it enough? Hemispherx has published a major study on the effects of Ampligen (Rintatolimod) on CFS. Ampligen has been under the gun since the FDA’s refusal to approve the drug in 2009, pending more study. A Big Blow – In
Continue[Phoenix Rising Newsletter] Comedown for XMRV at CROI/Hope for Ampligen/CFS Hits the Big Time…
Posted by Cort Johnson Welcome to the first Phoenix Rising newsletter with our new newsletter using the new Amazon ‘Simple’ Mail Service! CROI! — XMRV showed up in spades in the first major Retrovirology conference of the year, CROI (Conference on Retroviruses and Opportunistic Infections), occurring in Boston. The big news came from a study which suggested XMRV may have
ContinueHope for Ampligen-Breaking News!
Posted by Cort Johnson Discuss this article on the forums Written by Kelvin Lord I’ve been sitting on this story for a couple months now at the personal request of a couple physicians who were “on the fence” but I can now share with those who are interested in getting Ampligen, the future might be a little brighter. As you
ContinueMy Ampligen Treatment Continues (Ampligen Chronicles #2)
Discuss this article on the forums Written by Kelvin Lord Treatment #2 “In times of sickness the soul collects itself anew” Latin Proverb I arrived at the medical center this morning a little before 10:00AM with a slight headache , because of the drive, and because as a former-perfectionist, I hate to be late. My plan was to get there
ContinueMy Ampligen Treatment Continues (Ampligen Chronicles #3)
Discuss this article on the forums Written by Kelvin Lord Treatment #3 Three down, scores more to go! Today as before, Gwen got the needle in quickly, and strapped me up to 200ml of Ampligen, this time pushed through in under 35 minutes. Today I followed that up with a saline infusion, recommended by many, and it seemed to actually
ContinueWeed Killer Turns Male Frogs Into Females (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord Treatments #13 and #14 I’ll get to the weed-killer analogy quickly. But first, allow me a little celebration- today marks my eighth week on Ampligen, and I’ve now officially entered the “plateau” phase of my treatment. Whereas at first I was seeing almost weekly improvements in things like my sleep,
ContinueMopping Up After the Roller Coaster Ride (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord I overdid it this past weekend, and paid for it on Sunday. Nothing about this disease is predictable, except the unpredictability of it I guess, but I was feeling so good after Treatment #18 I actually got suckered into thinking I was “normal” last week. Big mistake. Talk about a
ContinueMy Allergic Cascade (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord I never heard the phrase “allergic cascade” until 10 days ago, when I woke up with a nose so swollen with mucous that I literally could not blow it out. Seeing my distorted face in the bathroom mirror, all I could think of was that classic scene in the movie
ContinueMy Ampligen – Double Dose, Double Redundancy (Ampligen Chronicles #5)
Discuss this article on the forums Written by Kelvin Lord Treatment #5 Today’s infusion took longer than any prior, because they doubled my dose. As promised, my Ampligen quantity was upped from 200ml to 400ml, which veterans tell me is the “full dose.” So as not to stress or shock the body with the increased chemical or the quantity of
Continue7 Absurd Things I Do to Make Life Manageable (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord “I am thankful for laughter, except when milk comes out of my nose.” Woody Allen It was Christmas time and the jazz band on the corner was playing the requisite boring Jingle Bells music. I just completed my 17th treatment yesterday, and things are going well. So much so as
Continue