Category: Miscellaneous

Posted by Cort Johnson Discuss this article on the forums Written by Cort The IGIVE video contest is an easy way to get Phoenix Rising and another non-profit some much needed cash. (The other non-profit, which we will vote on, will get 25% of the winnings.) Now that was exciting! It reminded me of the Chase Community Giving project when

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Posted by Cort Johnson I submitted an Freedom of Information Act (FOIA) request in 2007 out of frustration at the low number of CFS studies funded by the NIH. The goal was to figure out where the roadblocks in the CFS grant funding process at the NIH were. The request was complicated a bit because it included the period when

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Posted by Cort Johnson Discuss this article on the forums By Deirdre Donahue, USA Today (click here for the original article – hopefully USA Today will indulge our printing their review) “My books are my way of speaking to the world.” WASHINGTON — Writer Laura Hillenbrand doesn’t write about what she knows. She writes about what she can never have

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Posted by Cort Johnson Discuss this article on the forums (The repeat exercise tests for ME/CFS developed by Staci Stevens are beginning to transform the research field with growing numbers of researchers understanding that the abnormalities of ME/CFS patients reveal themselves fully only when they are put under stress. Phoenix Rising has been graced by two series of articles elucidating

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Posted by Cort Johnson Discuss this article on the forums Written by TheMoonIsBlue HELP THE WHITTEMORE PETERSON INSTITUTE WIN $1 MILLION DOLLARS! https://www.takepart.com/membersproject/vote ******Right next to where it says “Can’t find an organization in our list?”—> There is a link that says Suggest a charity******* Simply write “The Whittemore Peterson Institute for Neuro Immune Disease” and Select “Nevada” for the

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Posted by Cort Johnson Discuss this article on the forums CFSAC Oct 2010: Day III – The FEDS One could argue that Day Three was the most important of the meeting. After all what people with ME/CFS vitally need are treatment and research centers doing rigorous work on the disorder and only the feds will provide that kind of money.

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Posted by Cort Johnson Dr. Fred Friedberg, President of the IACFS/ME, requests that CFS/ME professionals and patient-oriented activists write letters to the CDC to Dr. Stephan Monroe with copies to Dr. Thomas Frieden regarding the selection of a new Chief of the Chronic Viral Diseases Branch at the CDC. See below for Dr. Friedberg’s request which is posted with his

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Discuss this article on the forums Written by Kelvin Lord There was a prison breakout in the USA this past weekend of historic proportion. And like most escapes that require patience and tenacity, this one took 10 long months of preparation. But when the time came, the escapee acted almost without thinking, and ran with freedom in his eyes, and

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Posted by Cort Johnson Discuss this article on the forums Written by muffin The Half Page Ads for ME/CFS in the Washington Post Are Ready for Your Feedback Please go here to check them out: https://mcwpa.org/?p=166 Go here to give your feedback: https://www.forum.mcwpa.org/viewforum…. Look under “Print Advertisements” and then look for “Ad Samples.” If you have not registered, you will

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Discuss this article on the forums (Pat Fero, the Executive Director of the Wisconsin ME/CFS Association used Freedom of Information Act requests, the online NIH Report Database, minutes from the CFSAC meetings and government to uncover a startling pattern of disregard to CFS by the NIH Some highlights: While the NIH’s Budget doubled over the last decade funding for ME/CFS

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Posted by Cort Johnson Discuss this article on the forums From “Time for Action” organizers: Bob Miller, Rivka Solomon, Charlotte von Salis Contact: Bob Miller bobmiller42@msn.com The “Time for Action” campaign was successful. Congratulations to patients, their families and friends! == THE ACTUAL NUMBERS == Over a two-week period, ME/CFS patients, their families and friends sent more than 2,000 emails

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Discuss this article on the forums (Thanks to Jennifer Spotila and the CFIDS Association for allowing us to post this inquiry into a complicated issue in ME/CFS – ‘exercise’ You can find the original copy of the article here.) Exercise is a four-letter word to many people with chronic fatigue syndrome (CFS). Every patient has been told by a doctor,

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