dragon public domain

ME/CFS: A disease at war with itself

Persuasion Smith shares some thoughts on the stigma that comes with ME/CFS … We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.  It

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Knitting Equals Pleasure, Despite ME/CFS

Jody Smith loves knitting. Again. She thought her days of knitting and purling were long over but … she’s back … A dozen years ago I was so decimated by ME/CFS that I couldn’t read, watch TV, or flip through a magazine. My days were spent zipping back and forth along the spectrum of waking and sleeping. I was wide


New Exercise Study Brings Both Illumination and Questions

Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer … Given the doubt, scepticism and even denial of benefits that often confronts ME/CFS patients, it’s not surprising that many patients crave clear-cut, objective evidence of physiological problems in the illness. Preferably something that will

August 8th

August 8th – What is the one thing about suffering with severe ME that the world needs to know?

Andrew Gladman brings our coverage of the Understanding & Remembrance Day for Severe ME, airing the voice of patients … Long, lazy August afternoons. The sun is shining, the birds are singing, the garden growing, and the children are free from school. For many this time of year means holidays, family get-togethers, and a period of general relaxation. However, for sufferers of

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ME/CFS and the Magic of the Canine Factor

Jody Smith has been taken by surprise by the value of having a dog when dealing with ME/CFS … There’s been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They’ve been fairly indifferent to my presence and

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ME/CFS and Beating the Clock

For Jody Smith, the ticking of a clock was enough at one time to chase her back to her bed. But with the passage of time, she has been able to reclaim her living room …  I have two clocks in my living room. One clock is on the wall across from where I usually sit at my computer. The