Posted by Cort Johnson Discuss this article on the forums Written by Cort The IGIVE video contest is an easy way to get Phoenix Rising and another non-profit some much needed cash. (The other non-profit, which we will vote on, will get 25% of the winnings.) Now that was exciting! It reminded me of the Chase Community Giving project when
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Hurdling the Roadblocks at the NIH
Posted by Cort Johnson I submitted an Freedom of Information Act (FOIA) request in 2007 out of frustration at the low number of CFS studies funded by the NIH. The goal was to figure out where the roadblocks in the CFS grant funding process at the NIH were. The request was complicated a bit because it included the period when
ContinueThe Stars Begin to Align at the NIH: A CFS Review Panel…. For CFS!
Posted by Cort Johnson A Head-Splitter – Of all the problems at the NIH the makeup of the panel that reviews and scores ME/CFS grants – called the CFS SEP – may have been the most head-splittingly frustrating. No subject is guaranteed to raise blood pressure levels more quickly and perhaps, no other group has been more effective at throttling
ContinueNo Money For ME/CFS? Think Again
Posted by Cort Johnson Oct 13 Testimony to the CFSAC Whenever the CFS community asks for funding we always hear are that ‘money is tight’ – too tight to help out with CFS – as if doing so would somehow break the budget. The truth is there’s always money for the NIH to do what it wants to do. Every
Continue“Unbroken”: Lauren Hillenbrand is Back! ( USA Today)
Posted by Cort Johnson Discuss this article on the forums By Deirdre Donahue, USA Today (click here for the original article – hopefully USA Today will indulge our printing their review) “My books are my way of speaking to the world.” WASHINGTON — Writer Laura Hillenbrand doesn’t write about what she knows. She writes about what she can never have
ContinueThe Stevens Protocol – Repeat Exercise Testing at the Pacific Fatigue Lab: Part I by Lannie
Posted by Cort Johnson Discuss this article on the forums (The repeat exercise tests for ME/CFS developed by Staci Stevens are beginning to transform the research field with growing numbers of researchers understanding that the abnormalities of ME/CFS patients reveal themselves fully only when they are put under stress. Phoenix Rising has been graced by two series of articles elucidating
ContinueNominate WPI for the American Express Members Project
Posted by Cort Johnson Discuss this article on the forums Written by TheMoonIsBlue HELP THE WHITTEMORE PETERSON INSTITUTE WIN $1 MILLION DOLLARS! https://www.takepart.com/membersproject/vote ******Right next to where it says “Can’t find an organization in our list?”—> There is a link that says Suggest a charity******* Simply write “The Whittemore Peterson Institute for Neuro Immune Disease” and Select “Nevada” for the
ContinueCFSAC II: A MAPP for ME/CFS?, Koh Disappoints, Mangan Stands up for ME/CFS?
Posted by Cort Johnson Discuss this article on the forums CFSAC Oct 2010: Day III – The FEDS One could argue that Day Three was the most important of the meeting. After all what people with ME/CFS vitally need are treatment and research centers doing rigorous work on the disorder and only the feds will provide that kind of money.
ContinueTreatment the UK way – the ME Association’s ME/CFS Treatment Survey
Posted by Cort Johnson In 2008 the ME Association conducted what maybe the most comprehensive survey of treatment effectiveness ever done in ME/CFS. Over four months 4,217 people took part, most of them online. It was by no means complete with twenty five treatments or treatment types covered but it did provide a broad overview of treatment effectiveness in the
ContinueIACFS/ME Chief Friedberg Urges Letter Writing Campaign for New Leadership at the CDC
Posted by Cort Johnson Dr. Fred Friedberg, President of the IACFS/ME, requests that CFS/ME professionals and patient-oriented activists write letters to the CDC to Dr. Stephan Monroe with copies to Dr. Thomas Frieden regarding the selection of a new Chief of the Chronic Viral Diseases Branch at the CDC. See below for Dr. Friedberg’s request which is posted with his
ContinueBreaking Out!
Discuss this article on the forums Written by Kelvin Lord There was a prison breakout in the USA this past weekend of historic proportion. And like most escapes that require patience and tenacity, this one took 10 long months of preparation. But when the time came, the escapee acted almost without thinking, and ran with freedom in his eyes, and
ContinueSIX Advertisement Samples for the Washington Post – Review & Comment by 31 Oct!
Posted by Cort Johnson Discuss this article on the forums Written by muffin The Half Page Ads for ME/CFS in the Washington Post Are Ready for Your Feedback Please go here to check them out: https://mcwpa.org/?p=166 Go here to give your feedback: https://www.forum.mcwpa.org/viewforum…. Look under “Print Advertisements” and then look for “Ad Samples.” If you have not registered, you will
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