In celebration of the 1st International XMRV Conference, here is the link to my “Dear Secretary Sebelius, Dear Director Collins” bedroom video. https://www.youtube.com/watch?v=8t1Xqp1LDxM I hope this starts a video campaign where people with ME/CFS make their own videos from their own beds, post them on youtube and email them to HHS Secretary Sebelius and NIH Director Collins. With hope for
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MLV Related Viruses – A Simpler Explanation
Posted by Cort Johnson Written by Bob MLV related viruses – a simpler explanation I’ve already posted a blog about MLV-related viruses but I thought it might be quite difficult to follow for some people who can’t follow the science easily… So I’ve now written this shortened, simpler, version, which hopefully might be easier to grasp. (feedback welcome.) MLV =
ContinuePost Exertional Malaise IV: Power to the People by Jennifer Spotila, J.D.
Discuss this article on the forums (Jennifer Spotila concludes her 4-part series on the hallmark symptom of ME/CFS – Post-exertional malaise. Thanks to Jenny and the CFIDS Association for their permission to post it. You can check out the original article here. ) “It is not necessary to understand [PEM] before we respect it.”1 This four-part series of articles about
ContinueCorinne’s FOLLOW-UP APPOINTMENT WITH DR. PETERSON
Discuss this article on the forums (Last year Corinne provided a five part series of her experience as a first time patient with Dr. Peterson. Now she’s back 8 months later to report on how everything has gone and how her second visit with Dr. Peterson went. Check out her first report here) As promised, I would like to share
ContinueExercising Discipline (Ampligen Chronicles)
Discuss this article on the forums Written by Kelvin Lord I absolutely hated gym class in Junior High. I was a skinny kid growing faster than my Mom could sew, and I had no arm muscles whatsoever. So when the dreaded “physical exam” days came around, I usually got physically sick. Trust me, vomiting cereal before you have to do
ContinueDr. Peterson’s Update (on XMRV, Ampligen, Anti-retrovirals, Stem Cells and more.)
Written by m0joey (Joey posts a scintillating review of his meeting with Dr. Peterson at a particularly opportune time. He gets in depth with Dr. Peterson on XMRV, ampligen and treatment) Just to backtrack a bit, I first saw Peterson in September of 2009. It was the same old story: what can I do to get these gutless NK cells
ContinueDr. Katz on XMRV, the Big Study, The Elephant in the Room and What the Heck ME/CFS Is
Posted by Cort Johnson The XMRV webinar on Blood Safety did not sound particularly enthralling but it turned out to be one of the better XMRV webinars/eminars/talks. Dr. Katz is a good speaker with a nice touch of humor but there was more to it than that. Dr. Katz, it turns out, has been treating CFS patients in his practice
ContinueOFFERING Up a Conference: The OFFER CFS/FM Conferences
Posted by Cort Johnson Discuss this article on the forums OFFER, the Patient Support Group started by Dr. Bateman in Salt Lake City, Utah missed giving a conference in 2009 but they’re back for their fifth conference on Sept 11th. They’re giving two conferences this year – a ‘Health Providers Conference’ (that patients are welcome to attend) and a ‘Patient
ContinueThe Best XMRV Study Underway? Dr. Singh Talks!
Posted by Cort Johnson Discuss this article on the forums A Little History – Dr. Singh has quite a history. She’s been at Stanford and Yale and Columbia (where she was Dr. Racaniello’s colleague) and is now a clinical pathologist at the University of Utah. She spends 80% of her time in her research lab searching for pathogens people and
ContinuePost-Exertional Malaise III: Cause and Effect By Jennifer M. Spotila, J.D.
Discuss this article on the forums (In part III of Jennie’s series on post-exertional malaise she tackles the always tricky question of cause. Kinesophobia – fear of movement – and deconditioning are present in some CFS patients but neither appear to be the cause. Instead Jenny points to several abnormalities in pain processing, oxygen consumption and the immune and suggests
ContinuePost-Exertional Malaise II: Perception and Reality By Jennifer M. Spotila, J.D.
Posted by Cort Johnson Discuss this article on the forums (In part two of the Post-exertional Malaise (PEM) series Jenny Spotila looks at the scientific evidence regarding PEM, including the startling repeat exercise studies done by the Pacific Fatigue Lab. She also examines the critical question “Is PEM unique to CFS”? Thanks to the CFIDS Association of America for allowing
ContinueEmbracing Reality (Ampligen Chronicles Trt#28)
Posted by Cort Johnson Discuss this article on the forums Written by Kelvin Lord I admit it. I really blew it, big time. Two weeks ago, after my last “glowing” report about how good I was feeling at the 6-month mark, I took it too far, and overdid it. I moved from the reality of my health, to a fantasy
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