Posted by Cort Johnson Several weeks prior to publication Dr. Mikovits spilled the beans on the XMRV FDA study stating in an interview with RGJ.Com, what has seemed to be more and more obvious – that the FDA paper in press is going to confirm the WPI’s findings when it is released. While no one yet had directly said so,
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Dr. Katz on XMRV, the Big Study, The Elephant in the Room and What the Heck ME/CFS Is
Posted by Cort Johnson The XMRV webinar on Blood Safety did not sound particularly enthralling but it turned out to be one of the better XMRV webinars/eminars/talks. Dr. Katz is a good speaker with a nice touch of humor but there was more to it than that. Dr. Katz, it turns out, has been treating CFS patients in his practice
ContinueBreakthroughs Happen: A Model For ME/CFS Success
Posted by Cort Johnson The New York Times lead article today “Sharing of Data Leads to Progress on Alzheimer’s”. described how a bold new type of research effort paid off big time in Alzheimer’s. All it took to succeed was for researchers to make a commitment to work together, share and collaborate…. nothing much really – just a commitment to
ContinueOFFERING Up a Conference: The OFFER CFS/FM Conferences
Posted by Cort Johnson Discuss this article on the forums OFFER, the Patient Support Group started by Dr. Bateman in Salt Lake City, Utah missed giving a conference in 2009 but they’re back for their fifth conference on Sept 11th. They’re giving two conferences this year – a ‘Health Providers Conference’ (that patients are welcome to attend) and a ‘Patient
ContinueThe Best XMRV Study Underway? Dr. Singh Talks!
Posted by Cort Johnson Discuss this article on the forums A Little History – Dr. Singh has quite a history. She’s been at Stanford and Yale and Columbia (where she was Dr. Racaniello’s colleague) and is now a clinical pathologist at the University of Utah. She spends 80% of her time in her research lab searching for pathogens people and
ContinuePost-Exertional Malaise III: Cause and Effect By Jennifer M. Spotila, J.D.
Discuss this article on the forums (In part III of Jennie’s series on post-exertional malaise she tackles the always tricky question of cause. Kinesophobia – fear of movement – and deconditioning are present in some CFS patients but neither appear to be the cause. Instead Jenny points to several abnormalities in pain processing, oxygen consumption and the immune and suggests
ContinuePost-Exertional Malaise II: Perception and Reality By Jennifer M. Spotila, J.D.
Posted by Cort Johnson Discuss this article on the forums (In part two of the Post-exertional Malaise (PEM) series Jenny Spotila looks at the scientific evidence regarding PEM, including the startling repeat exercise studies done by the Pacific Fatigue Lab. She also examines the critical question “Is PEM unique to CFS”? Thanks to the CFIDS Association of America for allowing
ContinueEmbracing Reality (Ampligen Chronicles Trt#28)
Posted by Cort Johnson Discuss this article on the forums Written by Kelvin Lord I admit it. I really blew it, big time. Two weeks ago, after my last “glowing” report about how good I was feeling at the 6-month mark, I took it too far, and overdid it. I moved from the reality of my health, to a fantasy
ContinueUnraveling Post-exertional Malaise By Jennifer M. Spotila, J.D.
Posted by Cort Johnson Discuss this article on the forums (Post-exertional malaise (PEM) is most likely the key symptom in ME/CFS. The realization that PEM (or a marked exacerbation of symptoms after exertion) may be unique to ME/CFS and needs to be closely examined finally hit home after the repeat exercise studies by the Pacific Fatigue Lab at the University
ContinueA Choice
Discuss this article on the forums Written by Lisa In life we have choices. Choosing gives us power. When we are thrust into a situation in which we have very little choice, it can leave one feeling very powerless. Thus has been my situation been for the many years I’ve been homeless in this very tent. Until now. For years
Continue“Where’s the Beef?” The WPI and the NIH
Posted by Cort Johnson ‘Where’s the Beef’ became a key catch phrase of the 1984 Presidential campaign but one wonders if the WPI is asking themselves the same thing today. They produced a major finding that got the feds to throw a substantial amount of money at XMRV none of which, thus far, has made to the WPI. The WPI
Continue“CFS Patients Address the CDC” – Striking New Video
Posted by Cort Johnson Check out Dreambirdies striking new video from the Phoenix Rising Forums
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